I can't believe Elana is almost a month old! Time has flown by but yet it seems to crawl. She is still in the NICU, still in the incubator, but is 3#12oz now and off IVs. She is only hooked up to the monitor and still getting feeds through her NG tube. Hoping to start the bottle soon with her.
Last week they were concerned with her digestive system so they stopped her feeds and put her on the IVs. I was so discouraged cause we were taking steps backward. They mentioned that Elana may have Hurschsprung's disease. Hurschsprungs is more common in kids with DS and it's were nerve endings are missing so she cannot stool properly. To fix it she would would have to have a colostomy bag for a period of time. I got on my knees and prayed for Elana's health. I can deal with Down Syndrome but I just can't deal with a colostomy. I knew God is in control and I had a good feeling that she was gonna be ok and if she did have it, God would give me the strength to "deal" with it. They did a biopsy and Praise God, the results were negative.
The process of her getting bigger is sooo SLOW. God is teaching me patience big time! Because she is a premee and so tiny the only way I get to hold her is with Kangaroo care "skin to skin". I love our kangaroo time. It is such an awesome bonding time that I would not have gotten if she were bigger. God knows the things I need! The verse "Be still and know that I am God" Psalm 46:10 keeps coming to my mind when I get discouraged with the slow process. Emma had her baby doll up her shirt yesturday and said to meme "SHHH I'm doing Kangaroo care with my baby". LOL so sweet.
We are so very impatient to get her home.
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